About our Lived Experience Advisory Panel (LEAP)
Dementia Jersey is passionate about listening to the experiences of people with dementia. We know that together with their family and friends, they have a wealth of knowledge and understanding that can only be gained from experience.
Our Lived Experience Advisory panel (LEAP) brings together up to 25 people with dementia and others with lived experience of supporting or caring for a person with dementia, across 3 groups. They discuss important issues related to living with a diagnosis of dementia to inform others, to be a source of accurate information and help in reducing stigma.
The panel meet monthly, led by one of our Dementia Advisors. Discussions have focused on people’s lived experiences of sourcing and receiving professional home care, receiving a diagnosis of dementia, day care centres, prescribed medication, and of attending hospital including out-patient, in-patient and A&E departments.
Summary documents for LEAP meetings are available below and include sections summarising the outcomes of the discussions and the recommendations of the panel. They can be downloaded in pdf format once opened. Printed copies are also available from our office.
If you would like more information about Dementia Jersey’s LEAP or would like to talk with one of the team about joining a LEAP meeting, please email info@dementia.je or call Dementia Jersey on 01534 723519.
You can read our latest LEAP reports below
April 2023
Our LEAP sessions are now held quarterly. In April the LEAP Panel members discussed their experience with physical and social activities with the majority stating one of the most important things you can do to keep healthy.
January 2023
In January the LEAP Panel members were asked to share their experience with Food including the ability to eat and drink, shopping, cooking, choking, dietician, dehydration, crockery and utensils.
December 2022
In December the LEAP Panel members were asked to share their experience of Retail Christmas Shopping.
November 2022
In November the LEAP members were asked to share their experience of Airport Travel.
October 2022
In October the LEAP members were asked to share their experience of Lasting Power of Attorney (LPA).
September 2022
In September the Lived Experience Advisory Panel members were asked to share their experiences related to driving for people with a diagnosis of dementia.
August 2022
In the light of the government’s commitment to a dementia strategy for Jersey, the LEAP members were asked to share their experiences of services for people with dementia and carers, and to make recommendations for improvements.
July 2022
Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.
June 2022
In June, the LEAP members were asked to share their experiences of care homes, including; guidance and support available to them when considering a move into residential care, visiting someone else in care, supporting a relative living in a care home or being resident in one themselves, either permanently or for a limited period of respite. They were also asked to make any recommendations for changes they believed would enhance the systems involved in moving to a care home or for residents’ experiences in care.
May 2022
In May the LEAP’s focus moved on to Dementia Jersey with Panel members being asked to share their lived experiences of Dementia Jersey’s services. This review included all the support, activities and events available for people with dementia and the services for supporters and carers.
April 2022
Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.
March 2022
Panel members were asked to share their lived experiences of respite care, including all aspects of this from sourcing it, its availability and its benefits. In this instance we defined respite as ‘care provided by a professional to replace support or care usually provided by family or friends of a person with dementia’.
February 2022
Panel members were asked to share their lived experiences of attending the hospital, including the A&E department, out-patients and as in-patients.
January 2022
Panel members were asked to share their lived experiences of medication, both at the time the medication was first being considered or prescribed and their continuing experiences taking medication. Discussions also included the medications’ perceived efficacy for the management of any symptoms of dementia, and their experiences of any side effects.
December 2021
Panel members were asked to share their lived experiences of day care centres and were then asked to describe what they considered excellence in day care centre provision would be like.
November 2021
Panel members were asked to share their experiences of receiving a diagnosis of dementia, which all but one panel member received in Jersey via the Memory Assessment Service (MAS).
October 2021
Panel members were asked to share what, from their experience was most important to them when accessing care at home.
Latest news and information from Dementia Jersey
Join our 300 Club for just £25 and be in with the chance of winning up to £100 every month throughout 2024. Our 300 Club helps raise vital funds to support people in Jersey living with dementia.
It also makes a great Christmas present with no wrapping necessary. We’ll post the ticket straight to you to pop in the card. Job done!
You`ve got to be in it to win it! Find out more here https://www.dementia.je/300-club-2024 or email info@dementia.je - Good luck!
If you have any questions, please call us on 01534 723519.
We’re at @jerseymarketsofficial today (5th), tomorrow (6th) and Friday (8th) this week selling our wonderful Christmas cards and our 300 Club tickets. We’ll be there 10am-2.30pm.
Our Christmas cards have been designed by individuals from our art group and our 300 Club tickets make the perfect Christmas presents 🎁
All money raised from our Christmas cards and 300 Club go towards supporting people in Jersey affected by dementia.
#DementiaJersey #JerseyCI #Dementia #Christmas
Our Walk N Talk attendees visited the Maritime Museum recently to escape the colder weather and a fun time was had be all especially with the interactive parts of the exhibition! It inspired nice chats around days out by the seaside.
Thank you to our friends at @jerseyheritage 🛳️⚓️
If you know anyone with a diagnosis of dementia who might like to join our Walk N Talk activity then please contact Susie on 01534 723 519 or susie@dementia.je
#DementiaJersey #Dementia #JerseyCI
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Get in touch
- Osprey House, Old Street, St Helier, Jersey, JE2 3RG
- Monday to Friday
10am to 2pm - 01534 723519
- info@dementia.je