About our Lived Experience Advisory Panel (LEAP)

Dementia Jersey is passionate about listening to the experiences of people with dementia. We know that together with their family and friends, they have a wealth of knowledge and understanding that can only be gained from experience. 

Our Lived Experience Advisory panel (LEAP) brings together up to 25 people with dementia and others with lived experience of supporting or caring for a person with dementia, across 3 groups. They discuss important issues related to living with a diagnosis of dementia to inform others, to be a source of accurate information and help in reducing stigma. 

The panel meet monthly, led by one of our Dementia Advisors. Discussions have focused on people’s lived experiences of sourcing and receiving professional home care, receiving a diagnosis of dementia, day care centres, prescribed medication, and of attending hospital including out-patient, in-patient and A&E departments.

Dementia Jersey Group of seniors in discussion

Summary documents for LEAP meetings are available below and include sections summarising the outcomes of the discussions and the recommendations of the panel. They can be downloaded in pdf format once opened.  Printed copies are also available from our office.

If you would like more information about Dementia Jersey’s LEAP or would like to talk with one of the team about joining a LEAP meeting, please email info@dementia.je or call Dementia Jersey on 01534 723519.

You can read our latest LEAP reports below

July 2022

Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.

June 2022

Dementia Jersey LEAP Care Homes

In June, the LEAP members were asked to share their experiences of care homes, including; guidance and support available to them when considering a move into residential care, visiting someone else in care, supporting a relative living in a care home or being resident in one themselves, either permanently or for a limited period of respite. They were also asked to make any recommendations for changes they believed would enhance the systems involved in moving to a care home or for residents’ experiences in care.

May 2022

Dementia Jersey LEAP Carer Support Group

In May the LEAP’s focus moved on to Dementia Jersey with Panel members being asked to share their lived experiences of Dementia Jersey’s services. This review included all the support, activities and events available for people with dementia and the services for supporters and carers.

April 2022

Dementia Jersey LEAP Long Term Care

Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.

March 2022

Dementia Jersey Care assessment

Panel members were asked to share their lived experiences of respite care, including all aspects of this from sourcing it, its availability and its benefits. In this instance we defined respite as ‘care provided by a professional to replace support or care usually provided by family or friends of a person with dementia’.

February 2022

Dementia Jersey Visiting Hospital

Panel members were asked to share their lived experiences of attending the hospital, including the A&E department, out-patients and as in-patients.

January 2022

Dementia Jersey Medication

Panel members were asked to share their lived experiences of medication, both at the time the medication was first being considered or prescribed and their continuing experiences taking medication. Discussions also included the medications’ perceived efficacy for the management of any symptoms of dementia, and their experiences of any side effects.

December 2021

Dementia Jersey Respite Care

Panel members were asked to share their lived experiences of day care centres and were then asked to describe what they considered excellence in day care centre provision would be like.

November 2021

Dementia Jersey Medical Assessment

Panel members were asked to share their experiences of receiving a diagnosis of dementia, which all but one panel member received in Jersey via the Memory Assessment Service (MAS).

October 2021

Dementia Jersey Medical Assessment

Panel members were asked to share what, from their experience was most important to them when accessing care at home.

Latest News and Information from Dementia Jersey

Join us on Saturday 10 December at 2.30pm for the annual Dementia Jersey Christmas Carol Service at the Town Church (St Helier Parish Church). The service will be followed by refreshments and festive mince pies.

Some disabled parking will be available in the church grounds for people with a blue disabled parking card and on the day we will operate a drop-off system for others with mobility problems.

We really look forward to seeing all our friends and supporters at this years service.

For further information
Email: info@dementia.je or Tel: 01534 723519
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Today marks #InternationalVolunteerDay and we wanted to take this opportunity to celebrate our incredible volunteers and trustees who have given up their time in 2022 to support the work we do. Your contribution and commitment means that we can continue to provide much needed support to people in Jersey living with dementia.

We couldn’t do what we do without you, thank you! 👏🏽
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The AJC Christmas Fair is back! Come see us tomorrow (Saturday 26th) at the Town Hall where we'll be selling our lovely Christmas cards designed by some of our Art Exploration group attendees and our remaining 300 Club tickets! Other great local charities will be there selling their Christmas goodies too. Plus entertainment from Jerrriaise folk band Mêli-Mêlo, BSK Choir, SwingStyle and Auerole Choir.

Time: 9.30pm to 3.30pm
Location: Assembly Room at the Town Hall

Santa and his Elf will be arriving at 12.30 for the little ones - £3 per child. All proceeds will go to Santa's charity of choice.

Light lunches/refreshments will be available from the BSK crew!

See you there 🎅🏽
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