About our Lived Experience Advisory Panel (LEAP)
Dementia Jersey is passionate about listening to the experiences of people with dementia. We know that together with their family and friends, they have a wealth of knowledge and understanding that can only be gained from experience.
Our Lived Experience Advisory panel (LEAP) brings together up to 25 people with dementia and others with lived experience of supporting or caring for a person with dementia, across 3 groups. They discuss important issues related to living with a diagnosis of dementia to inform others, to be a source of accurate information and help in reducing stigma.
The panel meet monthly, led by one of our Dementia Advisors. Discussions have focused on people’s lived experiences of sourcing and receiving professional home care, receiving a diagnosis of dementia, day care centres, prescribed medication, and of attending hospital including out-patient, in-patient and A&E departments.
Summary documents for LEAP meetings are available below and include sections summarising the outcomes of the discussions and the recommendations of the panel. They can be downloaded in pdf format once opened. Printed copies are also available from our office.
If you would like more information about Dementia Jersey’s LEAP or would like to talk with one of the team about joining a LEAP meeting, please email info@dementia.je or call Dementia Jersey on 01534 723519.
You can read our latest LEAP reports below
January 2023
In January the LEAP Panel members were asked to share their experience with Food including the ability to eat and drink, shopping, cooking, choking, dietician, dehydration, crockery and utensils.
December 2022
In December the LEAP Panel members were asked to share their experience of Retail Christmas Shopping.
November 2022
In November the LEAP members were asked to share their experience of Airport Travel.
October 2022
In October the LEAP members were asked to share their experience of Lasting Power of Attorney (LPA).
September 2022
In September the Lived Experience Advisory Panel members were asked to share their experiences related to driving for people with a diagnosis of dementia.
August 2022
In the light of the government’s commitment to a dementia strategy for Jersey, the LEAP members were asked to share their experiences of services for people with dementia and carers, and to make recommendations for improvements.
July 2022
Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.
June 2022
In June, the LEAP members were asked to share their experiences of care homes, including; guidance and support available to them when considering a move into residential care, visiting someone else in care, supporting a relative living in a care home or being resident in one themselves, either permanently or for a limited period of respite. They were also asked to make any recommendations for changes they believed would enhance the systems involved in moving to a care home or for residents’ experiences in care.
May 2022
In May the LEAP’s focus moved on to Dementia Jersey with Panel members being asked to share their lived experiences of Dementia Jersey’s services. This review included all the support, activities and events available for people with dementia and the services for supporters and carers.
April 2022
Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.
March 2022
Panel members were asked to share their lived experiences of respite care, including all aspects of this from sourcing it, its availability and its benefits. In this instance we defined respite as ‘care provided by a professional to replace support or care usually provided by family or friends of a person with dementia’.
February 2022
Panel members were asked to share their lived experiences of attending the hospital, including the A&E department, out-patients and as in-patients.
January 2022
Panel members were asked to share their lived experiences of medication, both at the time the medication was first being considered or prescribed and their continuing experiences taking medication. Discussions also included the medications’ perceived efficacy for the management of any symptoms of dementia, and their experiences of any side effects.
December 2021
Panel members were asked to share their lived experiences of day care centres and were then asked to describe what they considered excellence in day care centre provision would be like.
November 2021
Panel members were asked to share their experiences of receiving a diagnosis of dementia, which all but one panel member received in Jersey via the Memory Assessment Service (MAS).
October 2021
Panel members were asked to share what, from their experience was most important to them when accessing care at home.
Latest news and information from Dementia Jersey
We are holding a Carers` Support Meeting, with Guest Speakers, next week at the Monterey Hotel and would be delighted if you could join us on Monday 5th June.
The focus for this meeting is "Wellbeing" with a non-alcoholic wine-tasting session with Emma from Clarity Wines, followed by a "Keep Calm and Tap It Better" workshop with Yolanda of Tap it Better.
EVENT DETAILS
VENUE: The Monterey Hotel - St Saviour`s Road
DATE: Monday 5th June 2023
TIME: 19:00 - 21:00
GUEST SPEAKER TOPIC: Wellbeing
EVENT COST: FREE
REFRESHEMENTS: Included
RSVP
Please book your place by 17:00 on Friday 2nd June 2023
Email: info@dementia.je or call: 01534 723519
#DementiaJersey
#DementiaSupport
#CarersSupportMeeting
#MontereyHotelJersey
We`ve been based at Natwest International today at their pop-up Market Stall space in their Library Place branch. We`re here for another couple of hours so pop along and say hello.
Thank you for letting us use your lovely space NatWest International!
#DementiaAwarenessWeek #DementiaJersey #Dementia #JerseyCI
Our Summer Cycle Challenge is back!
Cycle 100 miles this June and help people in Jersey living with dementia. You have 30 days to get your miles in, making this the perfect challenge for all to enjoy. All funds raised will allow us to continue supporting islanders affected by dementia.
Hit the link in our bio to find out more and to register.
#SummerCycleChallenge #DoingItForDementia #DementiaJersey #Dementia #JerseyCI
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Get in touch
- de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SL
- Monday to Friday
10am to 2pm - 01534 723519
- info@dementia.je
