About our Lived Experience Advisory Panel (LEAP)

Dementia Jersey is passionate about listening to the experiences of people with dementia. We know that together with their family and friends, they have a wealth of knowledge and understanding that can only be gained from experience. 

Our Lived Experience Advisory panel (LEAP) brings together up to 25 people with dementia and others with lived experience of supporting or caring for a person with dementia, across 3 groups. They discuss important issues related to living with a diagnosis of dementia to inform others, to be a source of accurate information and help in reducing stigma. 

The panel meet monthly, led by one of our Dementia Advisors. Discussions have focused on people’s lived experiences of sourcing and receiving professional home care, receiving a diagnosis of dementia, day care centres, prescribed medication, and of attending hospital including out-patient, in-patient and A&E departments.

Dementia Jersey Group of seniors in discussion

Summary documents for LEAP meetings are available below and include sections summarising the outcomes of the discussions and the recommendations of the panel. They can be downloaded in pdf format once opened.  Printed copies are also available from our office.

If you would like more information about Dementia Jersey’s LEAP or would like to talk with one of the team about joining a LEAP meeting, please email info@dementia.je or call Dementia Jersey on 01534 723519.

You can read our latest LEAP reports below

July 2022

Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.

June 2022

Dementia Jersey LEAP Care Homes

In June, the LEAP members were asked to share their experiences of care homes, including; guidance and support available to them when considering a move into residential care, visiting someone else in care, supporting a relative living in a care home or being resident in one themselves, either permanently or for a limited period of respite. They were also asked to make any recommendations for changes they believed would enhance the systems involved in moving to a care home or for residents’ experiences in care.

May 2022

Dementia Jersey LEAP Carer Support Group

In May the LEAP’s focus moved on to Dementia Jersey with Panel members being asked to share their lived experiences of Dementia Jersey’s services. This review included all the support, activities and events available for people with dementia and the services for supporters and carers.

April 2022

Dementia Jersey LEAP Long Term Care

Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.

March 2022

Dementia Jersey Care assessment

Panel members were asked to share their lived experiences of respite care, including all aspects of this from sourcing it, its availability and its benefits. In this instance we defined respite as ‘care provided by a professional to replace support or care usually provided by family or friends of a person with dementia’.

February 2022

Dementia Jersey Visiting Hospital

Panel members were asked to share their lived experiences of attending the hospital, including the A&E department, out-patients and as in-patients.

January 2022

Dementia Jersey Medication

Panel members were asked to share their lived experiences of medication, both at the time the medication was first being considered or prescribed and their continuing experiences taking medication. Discussions also included the medications’ perceived efficacy for the management of any symptoms of dementia, and their experiences of any side effects.

December 2021

Dementia Jersey Respite Care

Panel members were asked to share their lived experiences of day care centres and were then asked to describe what they considered excellence in day care centre provision would be like.

November 2021

Dementia Jersey Medical Assessment

Panel members were asked to share their experiences of receiving a diagnosis of dementia, which all but one panel member received in Jersey via the Memory Assessment Service (MAS).

October 2021

Dementia Jersey Medical Assessment

Panel members were asked to share what, from their experience was most important to them when accessing care at home.

Latest News and Information from Dementia Jersey

Today is the last day to get your miles in for our #50MileChallenge2023

Thank you to everyone who got involved, whether it was putting in the miles or sponsoring friends and family. Together, you have raised over £14,000, which will help make a huge difference to people in Jersey affected by dementia.

If you would like to show some support, you can sponsor the event via the link in our bio. Any donation, big or small, will help us move a step closer to achieving our vision of a dementia friendly island. Thank you!

This event has been kindly sponsored by @RavenscroftGroup
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Earn your Dementia Friends badge and help make Jersey a dementia friendly island! Our next Dementia Friends Jersey open session is in two days time, Wednesday 25 January.
Time: 12.45 - 14.00
Venue: Jersey Library

Contact Susie to book your place now!
About this event

Dementia Friends is the biggest ever initiative to change people’s perceptions of dementia. It aims to transform the way we think, act and talk about the condition.

Learn about dementia and discover the small changes that you can make to your day to day lives that will benefit people living with dementia in Jersey.

Learn the 5 key messages from this fun and interactive information session and earn you Dementia Friends badge.

Book now or contact us for more information:
Email: susie@dementia.je Tel: 01534 723519

Current pandemic guidelines will be followed. Please do not attend if you have any symptoms.
#dementiajersey #dementiaFriends #dementiaeducation
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Meet Joni, one of our activity attendees who is also taking on our #50MileChallenge2023 with a slight twist!

Joni was really keen to get involved and sign up to the challenge to help support the work we do but wasn't going to be able to complete the miles by foot. Instead of walking 50 miles, she will be taking 50 bus journeys throughout the month of January - a great example of the different ways you can get involved.

Huge thank you to Joni and everyone else who has signed up to the challenge so far, to those who have kindly sponsored participants, and to our event sponsor Ravenscroft Group.

Even if you aren't participating in the challenge, you can still show your support by leaving a donation. To leave a donation, click the link in our bio. All money raised from the event will go towards helping to make Jersey a dementia friendly island.

#DementiaJersey #DoingItForDementia #Dementia
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