About our Lived Experience Advisory Panel (LEAP)

Dementia Jersey is passionate about listening to the experiences of people with dementia. We know that together with their family and friends, they have a wealth of knowledge and understanding that can only be gained from experience. 

Our Lived Experience Advisory panel (LEAP) brings together up to 25 people with dementia and others with lived experience of supporting or caring for a person with dementia, across 3 groups. They discuss important issues related to living with a diagnosis of dementia to inform others, to be a source of accurate information and help in reducing stigma. 

The panel meet monthly with an emphasis on co-production. Discussions have focused on people’s lived experiences of sourcing and receiving professional home care, receiving a diagnosis of dementia, day care centres, prescribed medication, and of attending hospital including out-patient, in-patient and A&E departments.

Dementia Jersey Group of seniors in discussion

Further subjects for discussion will include, but will not be limited to, people’s experiences of the long term care scheme, driving and driving tests, Dementia Jersey’s services and activities, respite provision, and experiences of sourcing appropriate residential care and of the care received in care homes.

Summary documents for LEAP meetings are available below and include sections summarising the outcomes of the discussions and the recommendations of the panel. They can be downloaded in pdf format once opened.  Printed copies are also available from our office.

If you would like more information about Dementia Jersey’s LEAP or would like to talk with one of the team about joining a LEAP meeting, please email info@dementia.je or call Dementia Jersey on 01534 723519.

You can read our latest LEAP reports below

April 2022

Dementia Jersey LEAP Long Term Care

Panel members were asked to share their lived experiences of the Long Term Care (LTC) scheme including; the information available about this scheme, seeking professionals’ advice, and also the financial aspect of this, the assessment process, and their on-going experiences of the scheme once active for them.

March 2022

Dementia Jersey Care assessment

Panel members were asked to share their lived experiences of respite care, including all aspects of this from sourcing it, its availability and its benefits. In this instance we defined respite as ‘care provided by a professional to replace support or care usually provided by family or friends of a person with dementia’.

February 2022

Dementia Jersey Visiting Hospital

Panel members were asked to share their lived experiences of attending the hospital, including the A&E department, out-patients and as in-patients.

January 2022

Dementia Jersey Medication

Panel members were asked to share their lived experiences of medication, both at the time the medication was first being considered or prescribed and their continuing experiences taking medication. Discussions also included the medications’ perceived efficacy for the management of any symptoms of dementia, and their experiences of any side effects.

December 2021

Dementia Jersey Respite Care

Panel members were asked to share their lived experiences of day care centres and were then asked to describe what they considered excellence in day care centre provision would be like.

November 2021

Dementia Jersey Medical Assessment

Panel members were asked to share their experiences of receiving a diagnosis of dementia, which all but one panel member received in Jersey via the Memory Assessment Service (MAS).

October 2021

Dementia Jersey Medical Assessment

Panel members were asked to share what, from their experience was most important to them when accessing care at home.

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